Name: Collin
Age: 11
Type of Photosensitivity: XP
I live in: Arizona

What I enjoy most about Children Of The Moon is: The web sites. I liked the site on how to create things out of balloons.

A good thing that has happened to me because of having XP is: I get spoiled. Everyone knows me at school. They think I am a celebrity because I have been on TV and in the newspaper.

The hardest thing about having XP: Lights bothers my eyes and I can't go outside whenever I want.

What I would like other people to know about me: I like to take apart things and learn things from my older brother. I like to do things that he likes. I like to have fun with my friends. They like to come over and play cause I have so many things to do inside.

My goals and wishes for my future: Have a million dollars. Be like my oldest brother.

What I would like to say to other children who face challenges in their lives: Look for the good things you get to do and don't worry about the things you don't get to do. Sometimes the things you get to do are very nice and fun.

Name: Sean
Age: 9
Type of Photosensitivity: Hydroa vacciniforme
I live in: Missouri

What I enjoy most about Children Of The Moon is: everything

A good thing that has happened to me because of having Hydroa vacciniforme is: The only thing is meeting all of you and knowing we're not alone.

The hardest thing about having Hydroa vacciniforme: Not being able to play outside with friends. Feeling left out. Having painful blisters. Wondering why this happened to me. . .

What I would like other people to know about me: HV is a only a part of who I am. I love horses, sports, watching wrestling, playing with my friends and reading. I'm good at math and geography. I have a horse, 2 dogs and lots of cats.

My goals and wishes for my future: I want to be a sports commentator and have my HV go away so I can go outside in the daytime.

What I would like to say to other children who face challenges in their lives: Keep your sense of humor.

Name: Polly
Age: adult
Type of Photosensitivity: I am sensitive to ALL forms of light, at least that is how it seems.
I live in: West Virginia

What I enjoy most about Children Of The Moon is: The feeling of belonging
and the great activities and fun surfing.

A good thing that has happened to me because of having extreme photosensitivy is: I don't have a lot of wrinkles and I don't have to work in the hay field.

The hardest thing about having extreme photosensitivity is : The isolation, watching my husband leave for a four wheel ride knowing it is too early for me to go out. Watching the world go by and then knowing I am going to have to shut the curtains and not even see that when summer comes.

What I would like other people to know about me: That I am still one of
God's children and HE is not punishing me.

My goals and wishes for my future: To not let this time go to waste.

What I would like to say to other children who face challenges in their lives: Keep your mind active and face every challenge as a game that
has to be won.

Now that you have become acquainted with some of us, we invite you to enjoy some birthday activities. The following links will each open in a new browser window. To return to this page, simply close that window. Enjoy!

How Birthday Parties Got Started
Kids Exchange has some great information on the history of birthday celebrations, how birthdays are celebrated in different countries, and how several families celebrate birthdays.

Find Famous People Who Share Your Birthdate
Have fun discovering others who share your own special day!

The Birthday Cake
Ask an adult to help you make this scrumpdilyicious home made birthday cake. YUM!

The Birthday Dance!
Send this to your pals for chuckles and yuckles! Too Fun!

Find Your Decimal Birthday
Hey, why celebrate year by year when you can celebrate every 1,000 days too!