December 1999

Some of my most recent news is very exciting! This summer we were able to travel to The United States to attend a wonderful place called Camp Sundown.

I spent a wonderful week at Camp Sundown, and I think all the people in the XP Society are doing a great job! They help the children with problems, and all the volunteers are so kind.

At camp, I made new friends and we did things that we can't do in daylight: we played baseball, basketball and we rode horses.

While there, I learned that I am not the only one with this disease (XP). It was really a Block the Sun not the Fun project and for people suffering from Xeroderma Pigmentosum it is the only occasion where we can all come together, really have fun, and amuse ourselves without danger of being exposed to sun light.

Being locked up in the house all day long is somewhat very harassing and stressing but after the Camp I've come to realize that I'm not the only one in that situation and that there are some patients who suffers more than I do.

I've also come to know how people can be good hearted because many people in my country generously contributed to make my trip to the US possible, and Air France airline generously gave us two free tickets. A very nice person in Canada who makes clothing that helps block the sun sent me a special outfit to help give me some added protection during my adventure in traveling to the US. Her name is Dawn and you can visit her here.

It really makes me feels good to see how people can get together when they want, and in my opinion that is how the world should be all the time.